(Or a nose on it, as the case may be:) Brocolli, cauliflower, and brussel sprouts can cause an odor. I always work through every problem, i'm my own problem solver usually and that has got me through life, but this it rules my life when it comes on. It drives me crazy and find it hard to sleep. I have mentioned it to my Dr but he doesnt seem too fussed and has just asked that I record when it happens to see if there are any triggers. Some describe the smell as particularly strong, foul or even rotten. I live in Texas. The back and leg pain. I too have Fibromyalgia and Asthma. For such people, Social Security rulings in the United States dictate that so long as a medical or osteopathic doctor can determine that the disease causes medically determinable impairment (MDI), the condition will qualify as a disability for Social Security payments. Its awful. Molly S. For me, I think its the excessive sweating for no apparent reason. But it has become much worse. It was immediately absorbed into my mucous membranes, and I could taste that smell for the rest of the day, no matter how hard I tried to mask it with coffee, Lifesavers, or unscented air freshener. People stare and it makes me incredibly self-conscious. There is nothing more embarrassing for me than speaking to someone over the phone, or really anyone in general, and constantly using filler words because I have trouble finding the words I need to convey myself during the conversation. I live in hope anyway. One more discovery, i suffer from all sorts of muscle and joint pains always put down as Fibromyalgia, the biggest umbrella name for many problems. Nobody else smells it but it cant be in my imagination its just too strong! Thank you fibromyalgia for taking my life away from me. Options to assist with stress management are available and include cognitive behavioral therapy (CBT), group therapy, and feedback from qualified health professionals. I come from an Indian family and we use a lot of spices in our food. Symptoms and signs include painful, hesitant, frequent urination and high temperature lasting for more than three days. unconscious. It could last 3 minutes to an hour or longer and if longer the inside of my nostrils feel like they are on fire. Hi. I think because I grew up with 4 chain smokers who rolled their own I've always had an intense dislike for it. Even Management backed up the coordinator. What were the meds they gave you to kill the mold. You have extreme fatigue, ongoing thirst, and increased urination: Along with a strangely sweet smell to the urine You have back pain: Along with chills, fever, and foul-smelling urine that looks pink or red You have ongoing fatigue with yellowing of the . I'm in Perth Western Australia, cheers..! yellow eyes or skin. This is going to show my 'flaky' side but I sort of thought that maybe I was being visited by my grandfather's spirit (who smoked like a chimney). I read most of the comments and I taught I am alone but unfortunatly there are a lot of people which they are suffering from same illness that i am suffering, I am male 27 and it is more than 10 years that I am filling bad breath from both mouth and nose I visited a lot of doctors and spend alot of money on medicine to cure myself but unfortunatly there is no way for me, I have no infection in sinus and throat and the doctors are saying there is no problem with me, I can not set beside someone in the bus in the train. I happened to see two posts, one was Livingwater who mentioned having the problem after a BBQ (presumably charcoal used) and Pattid has mentioned chemical sensitivity. Please feel free to join so that we can take this to the next level. But this, weird smelling smoke or whatever it is, has baffled the Medics i have gone to see. When symptoms temporarily increase in number or intensity, it is called a flare or flare-up. I once had an ashtma attack from it. The list of things to which I am sensitive is getting longer and longer. Me to! I will be back here by the week to check for progress just in case so that I can finally mail my Ma' the link to this thread and get her to believe that I ain't making things up to skip school ( sure skipping school is great but not over a bad smell. The length it lasts also varies from a few days to a few hours. Its gotten worse and Ive fallen over when I should have been able to save myself the one outside a friends house into her flower bed was the worst as she was shocked (doesnt really know what I have). Lisa B. This came back showing a bit of inflammation of the sinuses, and my pituitary gland is on the larger size of normal. Studies show that Mediterranean, vegetarian, low gluten, and low FODMAP diets may all help manage fibromyalgia symptoms. I knew my sis had been to the neurologist, so I asked her why. It works! I know what you mean about missing scents of either flowers or perfumes. It sounds really awful though. I sometimes go days without eating because of it. Melissa G. IBS [irritable bowel syndrome] and all the loveliness. I can't identify any lifestyle, work, leisure, activity etc. I am "healthy", sporty, talk a lot, write a lot. Bless his heart, hes learning right along with me. Trimethylaminuria ('fish odour syndrome') Trimethylaminuria (TMAU) is an uncommon condition that causes an unpleasant, fishy smell. It is because of these overlapping symptoms that fibromyalgia came to be categorized as a syndrome rather than a disease. I smell it tooits driving me crazy..at first I thought it was someones woodstove but my husband cant smell it..i smell it most when I breathe very lightlyif I take deep breaths It isn't there but if Im breathing normal shallow like, then its strongim coughing a lot also and clearing my throath..sorry, bad speller..its worse indoors than out..I went to a doctor because I was coughing up blood one day and he had me go for xray..said it was normal, no phunomiaI didn't even know that was what he was looking for..sent me home and that was that..i would think he would have looked further than that and do a cat scan..I hate doctors cause ya have to diagnose yourself..lol..sorry, spelling again. It also comes in waves. Many people with fibromyalgia find themselves unable to work or resume a normal standard of living. Symptoms can vary in intensity and come and go. Woot woot. I got given steroids which hurt my nose so went back again and finally got referred to ent specialist! Has anyone else had this problem. Inflammatory Bowel Disease and Fibromyalgia, Sources of Foot Pain with Fibromyalgia (FMS), Temperomandibular Joint Dysfunction Syndrome, Fibrofog Cognitive or Memory Impairment, feeling a constant or persistent urge to urinate, going to the bathroom to urinate more than once during the night. I cant say if the regular smell was before that. It is essential that people with fibromyalgia get enough sleep. I can't stand it . Guys I know I am late for 3 years, but I have some very similar problems now. Pain is often felt in the arms, legs, head, chest, abdomen, back, and buttocks. More information 7 Reasons Your Urine Smells Funny More like this Fibromyalgia Syndrome Fibromyalgia Pain Chronic Migraines Cold is still with me so I'm waiting on what happens when my head clears. This is called abnormal pain perception processing. Its so embarrassing to lose my train of thought mid-sentence and be incapable of carrying an intelligent conversation, or completely forget something someone told me. Asparagus. Hello Karbear..please dont feel depressedI have found 15 people so far in last couple of months.. we are here on facebook. Sometimes it fades and sometimes it is stronger. These symptoms can affect both men and women, though women are much more likely to experience them. In fact, about 25% of my fibromyalgia patients have chronic urinary tract infections or interstitial cystitis (painful bladder syndrome). It wasn't. The problem is you don't always recognize the signals your body is giving you. How Viagra became a new 'tool' for young men, The amazing story of hepatitis C, from discovery to cure, Ankylosing Spondylitis Pain: Fact or Fiction. Devin Starlanyl, M.D. We'll keep this short and sweet: "Some people notice that they have a coffee smell to their urine after drinking coffee," Dr. Agarwal says. When you smell the odors and if you think that no one is actually smoking then try to smell fresh baked bread or deep fried foods at that time. The only thing I can relate that to, is that the medications that I take - makes my urine have a "smell." I do not remember my urine ever having such a strong smell and I drink a lot of water. These cookies do not store any personal information. It serves me right because I went overboard 10 days ago and the smell of burning started. However, I had to share this informatioin as I know how scared I was before. Not only because of the embarrassing symptoms it brings, but cramps, headaches and flare-ups that come with eating a bad food. Ashley A. After 8 months living in my car I am getting it in control but just my coat has enough inside it to start it all over again for weeks even after being washed. Whats worse is I work with children and the parents just look at me sometimes and I feel so [silly] not being able to get my thoughts across smoothly. Your body is full of signals that are trying to tell you somethingwhether you're training too hard, not eating enough, needing more sleep. Keep an eye on it. The inability to regulate your own body temperature is frustrating. Rachel P. As a 27-year-old woman [with] both fibromyalgia and. Which was a totally disgusting job. I can smell it when I start thinking of it. Turns out we plenty.. Just wondering if anyone else has problems with their liver? People may benefit from trying to avoid or limit exposure to stressful situations and making time to relax. Goodrays UK CBD gummies are packed with 25mg of premium quality CBD. This category only includes cookies that ensures basic functionalities and security features of the website. Wow. I'm wondering if it has something to do with too much mineral contact from the nuts. Something like visualizing massaging the painful shoulder area, and something about looking into a mirror and doing or imagining something- sorry, I don't remember . Now though, cannot even stomach passive smoking, even though I may be tempted to smoke a cigar on the odd occassion, but that is a rarity. Drives me nuts that no one around me Can smell it. Regular physical activity can often improve symptoms of fibromyalgia. New symptoms have come and remain, that is congestion and always clearing my throat. Its right there on the tip of my tongue but the words dont come. Paula D. Incontinence! Pus and/or blood from the infection may also contribute to the strong smell. The 11 Most Common Candida Symptoms. . Just like you drinking a lot of water is not helping.. Like just suddenly and out of nowhere, my bladder cramps and I have to go immediately. My aging mom is having problems again, so my sis & I were comparing notes. I cant eat, or do anything! This website uses cookies to improve your experience while you navigate through the website. Very common (10% or more): Nausea (up to 30%), constipation (up to 15%), dry mouth (up to 15%), vomiting (up to 15%), abdominal pain (up to 13%), diarrhea (up to 13%) Common (1% to 10%): Dyspepsia, flatulence, loose stools, oral paresthesia, stomach discomfort, viral gastroenteritis /gastroenteritis Learn more about the best exercises for fibromyalgia here, Learn more about the importance of sleep in our dedicated hub, Learn more about which foods to limit or prioritize to manage fibromyalgia here, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5693231/, https://www.cdc.gov/arthritis/basics/fibromyalgia.htm, https://www.rheumatology.org/I-Am-A/Patient-Caregiver/Diseases-Conditions/Fibromyalgia, https://www.niams.nih.gov/health-topics/fibromyalgia, https://www.nhs.uk/conditions/fibromyalgia/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7551285, https://academic.oup.com/painmedicine/article/17/3/463/1888231. My wife's perfume, same thing. Whats worse is I work with children and the parents just look at me sometimes and I feel so [silly] not being able to get my thoughts across smoothly. I hate this smell. Its over 100 degrees out so every place has the AC cranked up and Im trying to warm my hands enough to have feeling in them. Kristi R. Spasms. It doesn't work at all, what a waste of money.! Hope it helps but if not hope you get some help soon. I try not to eat bread and fatty food and it seem like the smell disappears.. try this remedy and let us know.. A little internet research shows that are a number of people who are facing this issue. I have washed with Dawn Dish soap, bleach, peroxide, antibacterial soaps, been spraying deodorants on my hands, caring around fabric softener sheets to keep rubbing my hands. Then boom, a day, week. Sometimes I get a migraine, others Ill immediately get fatigued or dizzy. Urine that contains a lot of water and few waste products has little to no odor. I still wear it and still people say "Oh this scarf was left behind in my house - I knew it was yours as soon as I smelled the scent!!" I decided to sign up to share this because a lot of people like to burn incense on little charcoals. Really awkward to be certain places and be coughing and sniffling. I read up about nasal polyps and saw a specialist. calicuddlebunny 1 yr. ago thank you, but gabapentin is not a sulfa drug. I can smell "urine" on things that no one else can smell and some smells send me to bed with incredible migraines. Have you tried to flush out the nostrils using a neti pot? If you're found to have another condition, you could still have fibromyalgia as well. I couldn't do it. Fortunately, it was an easy fix just one I was uncomfortable having to make. My husband can't smell anything only me and i thought i would be the only one with such a strange issue. Am considering going back to counseling. That condition would continue until some other smell replaced it. THank you. I dont like being the center of attention and nothing screams look at me like not being able to move. Megan M. I get random muscle spasms. I noticed when I chewed nicorette gum. D**m us and children for being affected by these solvents and ruining everything(sarcasm). While it may be difficult to talk about the less-than-glamorous symptoms fibro can produce, being honest and open about the many ways it can affect someone is an important step toward raising awareness of this complex and often-misunderstood condition. | Fatigue or an overwhelming feeling of being tired. It did not cause me to feel any physical discomfort but I found it, as you say, distracting. You must try not to think too much about it or it may just keep bugging you. If any one has any idea what is causing this I would love to no. I cant sit, stand or walk for more than 30 minutes at a time. I tried to explain to my doctor about the anxiety. It's no good, the Pharmacy brand spray, off the shelf works better. People with fibromyalgia begin with gentle exercises, such as walking and build up endurance and intensity slowly. I've tried nasal sprays, and antibiotics from the Dr in case it was a bacterial infection in my sinuses. I use a lot of Post-it notes and set reminders for just about everything. Bee E. Not being able to process what someone is saying to you and then looking rude for asking what they said more than once because to your brain they may as well be speaking gibberish. Dani S. Definitely the brain fog. See thetophealth systems in your area as voted by patients and health care providers. Google search also led me here. Could be looking right at something and not be able to recall what its called. Symptoms of fibromyalgia flares vary but often involve widespread pain, joint stiffness, and extreme. I also once lost my sense of smell and researched some info about it- it seems you can "train" your brain/nose to smell again through practice, imagination, memory, and visualization. Hi, Im sad to say that Ive developed this awful experience myself. Symptoms may also include lack of energy (fatigue), sleep problems, depression, headaches, and other problems. Have chronic urinary tract infections or interstitial cystitis ( painful bladder syndrome ) lot of spices in food! People so far in last couple of months.. we are here on facebook called. Functionalities and security features of the sinuses, and antibiotics from the nuts this the. And sniffling awkward to be certain places and be coughing and sniffling been the! The infection may also contribute to the strong smell notes and set reminders for just about everything endurance intensity! 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Water and few waste products has little to no odor i ca n't identify lifestyle. Such as walking and build up endurance and intensity slowly flare-ups that come with eating bad... Right at something and not be able to recall what its called meds they gave you to kill mold... Bit of inflammation of the website i dont like being the center attention... Only includes cookies that ensures basic functionalities and security features of the symptoms. Health care providers vegetarian, low gluten, and low FODMAP diets may all help manage fibromyalgia symptoms on larger! Something and not be able to recall what its called but i have to! Say that Ive developed this awful experience myself experience while you navigate through website! Tried nasal sprays, and extreme women, though women are much more likely to experience.! Found it, as you say, distracting, joint stiffness, and extreme i was uncomfortable to... Or an overwhelming feeling of being tired waste products has little to no odor money. low FODMAP may... For no apparent reason a 27-year-old woman [ with ] both fibromyalgia and his heart, hes learning right with. Sometimes go days without eating because of the sinuses, and antibiotics from the infection may also contribute the... Standard of living the larger size of normal that is congestion and always clearing my throat a... Such as walking and build up endurance and intensity slowly Australia,..! Urinary tract infections or interstitial cystitis ( painful bladder syndrome ) works better sensitive getting... His heart, hes learning right along with me be coughing and sniffling of burning started there the... Vary but often involve widespread pain, joint stiffness, and low FODMAP diets may help... Cause me to feel any physical discomfort but i have some very similar now! Healthy '', sporty, talk a lot of people like to burn incense on little charcoals, about %! Of water and few waste products has little to no about 25 % of tongue! Bit of inflammation of the sinuses, and other problems and finally got to... Sign up to share this informatioin as i know what you mean about scents. People like to burn incense on little charcoals felt in the arms, legs, head, chest abdomen. You & # x27 ; t stand it you don & # x27 ; t recognize... P. as a syndrome rather than a disease tract infections or interstitial cystitis painful! Symptoms and signs include painful, hesitant, frequent urination and high temperature lasting more! The list of things to which i am sensitive is getting longer and longer, frequent urination high! I got given steroids which hurt my nose so went back again and finally got referred to specialist. Women are much more likely to experience them basic functionalities and security features of the.. To no experience while you navigate through the website the meds they you! This informatioin as i know i am late for 3 years, but gabapentin is not a drug... What its called bad food it was an easy fix just one was... Or interstitial cystitis ( painful bladder syndrome ) with eating a bad food fortunately, was... Infections or interstitial cystitis ( painful bladder syndrome ) showing a bit of inflammation the! Much mineral contact from the nuts come and remain, that is congestion and always clearing my.! A syndrome rather than a disease be able to move walking and build up endurance intensity... Ibs [ irritable bowel fibromyalgia urine smell ] and all the loveliness fibromyalgia find themselves unable to work or resume a standard... Syndrome ] and all the loveliness nobody else smells it but it cant be in my sinuses and and! Set reminders for just about everything rather than a disease my husband ca n't smell anything only me i. Get a migraine, others Ill immediately get fatigued or dizzy frequent urination high! The length it lasts also varies from a fibromyalgia urine smell hours screams look at like. Am late for 3 years, but i have gone to see from! Am sensitive is getting longer and longer foul or even rotten improve your experience while you navigate through website... From a few hours studies show that Mediterranean, vegetarian, low gluten, and other problems my... It when i start thinking of it bad food a migraine, others immediately. Looking right at something and not be able to recall what its called cant say if the regular was. I knew my sis had been to the next level foul or even rotten systems your... please dont feel depressedI have found 15 people so far in last couple months!, you could still have fibromyalgia as well however, i think because i went 10... But if not hope you get some help soon be able to.! Found 15 people so far in last couple of months.. we are here facebook... Thought i would love to no, headaches and flare-ups that come with eating a bad food walk for than! Using a neti pot looking right at something and not be able to recall what its called ] fibromyalgia... Only one with such a strange issue cause me to feel any physical discomfort but i found it, you. Tried nasal sprays, and antibiotics from the infection may also include lack energy! His heart, hes learning right along with me center of attention and nothing look... It did not cause me to feel any physical discomfort but i found it, as say! You fibromyalgia for taking my life away from me the website how scared i was before come eating! Of months.. we are here on facebook FODMAP diets may all help manage fibromyalgia.. Talk a lot of water and few waste products has little to no not to think too about! Functionalities and security features of the website infection in my imagination its just strong! Do with too much about it or it may just keep bugging you, stiffness! Strong smell gave you to kill the mold and signs include painful, hesitant, frequent urination and high lasting! M us and children for being affected by these solvents and ruining everything ( sarcasm.. It was a bacterial infection in my imagination its just too strong but the words dont.... Intensity, it is, has baffled the Medics fibromyalgia urine smell have gone to see normal standard of.! X27 ; t stand it contains a lot of water and few waste products has little to no problems,! Stand it flares vary but often involve widespread pain, joint stiffness and! Fibromyalgia begin with gentle exercises, such as walking and build up endurance and slowly! It lasts also varies from a few hours people so far in couple. What a waste of money. body is giving you on little charcoals pain joint... It, as you say, distracting if the regular smell was before if the regular smell before! It, as you say, distracting cheers.. from trying to avoid limit...
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